A poor couple in Haiphong City are losing hope for their two sons who are suffering epidermolysis bullosa, a rare disease that local hospitals cannot treat.
The unfortunate boys have no friends They are children a of poor and unfortunate couple in Han Village of Thuy Nguyen District.
Local people said both boys’ skin is easily injured and ulcerated all the time and doctors at the Central Pediatrics Hospital have yet to find a solution.
Vu Nhan Hien, 32, and Hoang Thi Hien, 31, got married in 2004. Their first son was born in July 2005 weighing three kilos and bringing about great happiness to the young couple.
However, five hours laters, their baby’s body swelled up and broke out, causing blooding. Local hospital failed to find the cause, worrying the family.
The couple then brought their son to the Central Pediatrics Hospital. Doctors there said the boy suffered from epidermolysis bullosa, a rare disease that the doctors have yet to find an effective treatment for.
Little boy living with strange disease for nine years When the son was eight years old, the couple decided to have another baby. But the second boy was born with the same symptoms as his older brother.
Over the past nine years, the couple has been struggling to take care of their babies, often having sleepless nights looking after them to prevent possible injuries.
Hoang Thi Hien, the mother, said, “I suffer from a distress as both of our children suffer from this strange disease. Every night I got to bed with a bundle of worries that our babies may have more injuries if I sleep deeply and that they may never wake up.”
The whole family is living with a great complex as their neighbours don’t want their children to play with these boys for fear of disease infection.
“What make I the most paintful is that my sons don’t have a chance to go out for playing and studying. We’re compelled to keep them at home since they’re born,” she said.
His deformed hands Now the family is facing economic difficulties due to their modest income. The father worked as a seasonal porter but has not worked in six months, putting all pressure on the shoulder of the mother who works as a tailor at home.
Despite their hard conditions, the couple has been seeking an effective treatment for their sons, but they are losing hope, as no doctor seems to be able to help.
“I can’t understand why my parents have good health but my younger brother and I suffer from this strange disease. I dream of going to school to have a chance to make friends,” the first boy said.
“There are some new types of medical tapes for this disease but they are too expensive for us,” the father said.
Đăng ký: VietNam News
